TO ORDER:

Contact Terrance James to purchase a book.

Prader-Willi Syndrome: Quality of Life will be available in October, 2010.

Prader-Willi Syndrome: Growing Older will be available in December, 2010.

Members in good standing with the BCPWSA will have the postage covered.

PWS Books by Dr. Terrance James

Two books are now available. Click on a book cover for more details.

Prader-Willi Syndrome: Quality of Life takes a comprehensive look at PWS throughout the lifespan. It considers quality of life from the perspective of those with PWS, their parents, caregivers, and support workers.

The author writes from a psycho-socio-educational perspective, examining the whole person in the context of home, school and community settings, and within commonly understood life domains. Hope is found in current best practices such as individualized programming, supported indepen- dence, and community living. Personal and family stories illustrate the range and variability within the syndrome and the uniqueness of individual circumstances.

Readers will be encouraged by the improvements in supports and services in recent years. They will be reassured by the personal accounts and photographs illustrating daily life with PWS. They will read of heartaches and successes, and find hope in new perspectives and possibilities.

Prader-Willi Syndrome: Growing Older challenges readers to think about quality of life and the aging process. Importantly, it documents the stories of Canadians with Prader-Willi syndrome who are over the age of 40.

Contact Terrance James to purchase a book.

Members in good standing with the BCPWSA will have the postage covered.